Why do we write our poems // our stories Who will care // Who will read our work We write for ourselves remembering life as we want it to be gathering diamonds or thorns from life’s ashes knowing the story is never the story; but rather, a perspective of our past written and shaped to […]
Jessica , as I believe, we have mentioned has what was a sleeping Prolactanoma.
The Evil little thing is awake again.
On the 8th Jessica and me went along to Olympic Park for the biennial Independent Living Exposition. Being held there and a journey fraught with stress for Jessica we hired our regular Accessible Cabbie and had a fairly nice journey both there and back.
There are many different types of wheelchairs depending upon the level of disability or desired use for the chair. There was everything from walkers and toddlers wheelchairs, through to 4 wheel independent suspension+4 motors for Farmers. We had stair climbers and standing chairs for golf, one shaped like a peddle car foe a child. Tricycles, Racing Bikes. Off road vehicles. Finally, very expensive vehicles adapted for wheelchair drivers.
In the first photograph Jessica is trying the controls of a vehicle, earlier she had dropped her age by 15 years and crossed gender again to trial the 4 wheel drive independent suspension demonstration track. Then when she let on that she was female they also had to allow women to trial the trail.
The display I found the most humorous was that of the skeleton demonstrating passive exercise, there are two photos of it in the gallery, one for arm and the other for legs. And a few stuffed bears and a doll found their way into the action.
Life in between
Since our Pituitary tumour appeared to have been tamed in 2003, I say our since to a great degree it has governed our lives since we first met in 1998.
Jessica’s Stroke in January 2013 saw the return of enough eyesight to begin Woodturning,again, after many years. The stroke wiggled itself into our lives under the guise of a disturbance in her vision. We had made her way into the Hospital in Randwick to see the Eye registra only to have the diagnosis STROKE. It was in the Right Visul Cortex and so caused no physical disturbance other than almost 20 20 vision in that part of the eye that could see anything at all.
October of 2017 we were visited by a little visitor by the name of Heart Attack. With S.C.A.D which we will mention later.
Which should come first? Since our Heart Attack Jessica’s sight has returned to less than it was before and we now have a date for a Corneal transplant on April 18th.
Las week we had another M.R.I., called for by the Eye Specialist who will be doing the surgery. Just in the case that the Tumour was active again and was responsible for the recent reoccurence in our loss of vision.
We called our usual wheelchair cabbie and set off early to SVHospel in Darlinghurst where recurring M.R.I.s are free. Taking the DVD home with us we popped it into the computer to puzzle it out. From what we can see the Tumour may be slightly larger, though not large enough to reflect major sympotoms such as lactating or high Pregosterone levels. We shall not know for sure until we see the Specialist.
Dr. Raymond Damadian, a physician and scientist, toiled for years trying to produce a machine that could noninvasively scan the body with the use of magnets. Along with some graduate students, he constructed a superconducting magnet and fashioned a coil of antenna wires. Since no one wanted to be the first one in this contraption, Damadian volunteered to be the first patientDr. Raymond Damadian, a physician and scientist, toiled for years trying to produce a machine that could noninvasively scan the body with the use of magnets. Along with some graduate students, he constructed a superconducting magnet and fashioned a coil of antenna wires. Since no one wanted to be the first one in this contraption, Damadian volunteered to be the first patient…[…]
AS OF CHRISTMAS DAY 2018 the following is being added near the beginning of this page so any readers won’t have to spend so much time rolling down to the end, where I think most additions are supposed to be posted: 1960 TRIP ABROAD–In the spring of 1960, less than a year after we married, we both caught the hepatitis that was going around the UF campus. The doctors recommended rest, and that was the impetus for the European trip that had only been fantasized….[ ]
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Eastern Region Woodturners
There are two types of dreamers: the first is very sensitive but creative and the second is very secretive but adaptive, and I think I am capable of being both.
Epilepsy In-Depth Report
Epilepsy is a brain disorder involving repeated, spontaneous seizures of any type. Epilepsy is not a single disorder but rather a wide spectrum of problems. What all types of epilepsy share are recurrent, unprovoked seizures caused by an uncontrolled electrical discharge from nerve cells in the cerebral cortex. This part of the brain controls higher mental functions, general movement, and the functions of the internal organs in the abdominal cavity, perception, and behavioral reactions.
Seizures are a symptom of epilepsy. Seizures (“fits,” convulsions) are episodes of disturbed brain function that cause changes in attention or behavior. They are caused by abnormally excited electrical signals in the brain.
A single seizure may be related to a temporary medical problem (such as brain or tumor withdrawal from alcohol). If repeated seizures do not happen again once this underlying problem is corrected, the person does not have epilepsy.
A single, first seizure that cannot be explained by a temporary medical problem has about a 25% chance of returning. After a second seizure occurs, there is about a 70% chance of future seizures and the diagnosis of epilepsy.
TYPES OF EPILEPSY
Epilepsy is generally classified into two main categories based on seizure type:
- Partial (also called focal or localized) seizures. These seizures are more common than generalized seizures and occur in one or more specific locations in the brain. In some cases, partial seizures can spread to wide regions of the brain. They are likely to develop from specific injuries, but in most cases the exact origins are unknown ( idiopathic ).
- Generalized seizures. These seizures typically occur in both sides of the brain. Many forms of these seizures are genetically based. There is usually normal neurologic function.
PARTIAL SEIZURES (ALSO CALLED FOCAL SEIZURES)
These seizures are subcategorized as “simple” or “complex partial.”
- Simple Partial Seizures. A person with a simple partial seizure (sometimes known as Jacksonian epilepsy) does not lose consciousness, but may experience confusion, jerking movements, tingling, or odd mental and emotional events. Such events may include deja vu, mild hallucinations, or extreme responses to smell and taste. After the seizure, the patient usually has temporary weakness in certain muscles. These seizures typically last about 90 seconds.
- Complex Partial Seizures. Slightly over half of seizures in adults are complex partial type. About 80% of these seizures originate in the temporal lobe, the part of the brain located close to the ear. Disturbances there can result in loss of judgment, involuntary or uncontrolled behavior, or even loss of consciousness. Patients may lose consciousness briefly and appear to others as motionless with a vacant stare. Emotions can be exaggerated; some patients even appear to be drunk. After a few seconds, a patient may begin to perform repetitive movements, such as chewing or smacking of lips. Episodes usually last no more than 2 minutes. They may occur infrequently, or as often as every day. A throbbing headache may follow a complex partial seizure.
In some cases, simple or complex partial seizures evolve into what are known as secondarily generalized seizures. The progress may be so rapid that the partial stage is not even noticed.
Generalized seizures are caused by nerve cell disturbances that occur in more widespread areas of the brain than do partial seizures. Therefore, they have a more serious effect on the patient. They are further subcategorized as tonic-clonic (or grand mal), absence (petit mal), myoclonic, or atonic seizures.
Tonic-Clonic (Grand Mal) Seizures. The first stage of a grand mal seizure is called the tonic phase, in which the muscles suddenly contract, causing the patient to fall and lie stiffly for about 10 – 30 seconds. Some people experience a premonition or aura before a grand mal seizure. Most, however, lose consciousness without warning. If the throat or larynx is affected, there may be a high-pitched musical sound (stridor) when the patient inhales. Spasms occur for about 30 seconds to 1 minute. Then the seizure enters the second phase, called the clonic phase. The muscles begin to alternate between relaxation and rigidity. After this phase, the patient may lose bowel or urinary control. The seizure usually lasts a total of 2 – 3 minutes, after which the patient remains unconscious for a while and then awakens to confusion and extreme fatigue. A severe throbbing headache similar to migraine may also follow the tonic-clonic phases.
Absence (Petit Mal) Seizures. Absence or petit mal seizures are brief losses of consciousness that occur for 3 – 30 seconds. Physical movement and loss of attention may stop for only a moment. Such seizures may pass unnoticed by others. Young children may simply appear to be staring or walking distractedly. Petit mal may be confused with simple or complex partial seizures, or even with attention deficit disorder. In petit mal, however, a person may experience attacks as often as 50 – 100 times a day.
Myoclonic. Myoclonic seizures are a series of brief jerky contractions of specific muscle groups, such as the face or trunk……
Read more at Epilepsy In-Depth Report – New York Times
Epilepsy – In-Depth Report – NY Times Health. 2017. Epilepsy – In-Depth Report – NY Times Health. [ONLINE] Available at: http://www.nytimes.com/health/guides/disease/epilepsy/print.html. [Accessed 07 October 2017].
The above links are just some of those you will find if you would like to know a little more about SCAD.
On the 7th June, Jessica had gone into St. Vincent’s hospital for the routine pre-admission, before her Total hip replacement the following Wednesday, I had gone to the dental hospital to have some new dentures fitted, intending to go to the hospital afterwards.
Things were not to be as routine as they usually are, throughout the proceedings it was discovered that unbeknown to either of us Jessica had recently had two small heart attacks.
Jessica has Autonomic Dysreflexia and does not experience pain in the same way as I do which is why the slight pains in her chest and left arm were thought nothing of because they seemed such tiny pains.
An EEG, Cardiac ultrasound, CT Angiography later confirmed that a serious event had taken place. For those who know Jessica as soon as she dressed herself after the CT Angiography she shot through even though the Cardiac Specialist had wanted to admit her.
Well, we received a telephone call that evening from a Dr Andrew Jabbour telling madame that she had a very serious condition for which he was arranging an Angiogram the next morning. During the procedure Jessica suffered an incidence of of Bradycardia which truncated the proceedings though enough information was gathered to make a diagnosis.
They called “code blue” and admitted her and when I arrived she was as chirpy as ever after her latest adventure.
Apparently her event of Spontaneous Coronary Artery Dissection had been totally asymptomatic since it cannot quite be determined when it happened and Jessica recalls no symptoms-
Signs and symptoms of spontaneous coronary artery dissection (SCAD) are the same as symptoms of other types of heart attacks and may include:
- Chest pain
- A rapid heartbeat or fluttery feeling in your chest
- Pain in your arms, shoulders or jaw
- Shortness of breath
- Unusual, extreme tiredness
And I noticed none.
For all anyone seems to guess, for very little information came our way from her medical team, it may have happened a few years ago down to a few hours ago.
Spontaneous coronary artery dissection (SCAD) is the leading cause of heart attack in women under age 40 and until recently was largely unstudied due to the erroneous belief that it was a rare occurrence. Novel patient-initiated research initiated in 2010 by the multidisciplinary Mayo Clinic SCAD Research Program SCAD is changing that. Mayo Clinic is the leading clinical and research program for SCAD, a cause of heart attack
Don’t worry — you’re just tired and out of sorts after having your baby. But the chest pain experienced by the woman you’re about to meet was much more than a difficult recovery. She had a heart attack when a rare and deadly condition stopped blood flow to her heart. The same thing happened to another woman. After sharing their stories on social networking sites they found more women with the same problem. That’s when they
A heart attack at age 35. That’s not supposed to happen. The woman you’re about to meet suffered what’s called a spontaneous coronary artery dissection, or SCAD. It’s a condition that’s hard to diagnose and there’s very little information available about it. Experts at Mayo Clinic have results from studies aimed at learning more about this life-threatening condition.
Jessica’s hip Replacement was cancelled and now she is getting to know the world of SCAD survivors with many appointments to various clinics.