I have had epilepsy, you could say, all my life and have run out of anticonvulsants which manage the condition sufficiently.
For the past several month I have been experiencing, to various degrees, episodes when I cannot retain my balance or actually do fall over; accompanied by double vision wherein the second of the object appears to be quite distant from the first. These experiences began when I tried a new drug for me, last year, we discontinued the drug.
Now, using Perampanel I am having the same experiences though more extreme, the events usually occur either early mornings or late at night, though I had one mid-morning on Thursday.
Two days beforehand I was getting myself ready for a dental appointment ( Sydney Dental Hospital) after which I planned to visit Jessica at St. Vincent’s hospital where she has had her heart surgery – all good. I had gone into the bathroom to capture Jessica’s old walking stick hoping to remain upright on two sticks long enough for the episode to wear off and for me to do the usual ‘be in 2 places at once’ thing that is very much part of my life. By this time I was already having the seizure because of the fixated manner of thought processing, in the bathroom I tripped and fell hitting my forehead, back of head and hip on the porcelain toilet pedestal. Still have some very interesting op art on my face and rear.
I estimate that I was out for about 20 -30 minutes since I came to at the sound of the door being knocked which would have been Jessica’s Tuesday carer – the message to stop all services didn’t make its way to the end of the line. I still could not stand and crawled to the front door, praying she wouldn’t leave before I got to it. Hauling myself up by the lock I opened the door and then almost fell back over but was caught, the ambulance was called and a trip to Prince Of Wales Hospital Randwick saw me for about 8 ish hours, where no one knew which way was up either.
I surmise that there may be a drug interaction we have missed this else it is something new to me in my older age. When prescribed Epilim with Lamictal quite some years ago the combination brought me to my knees – let’s say, but nothing is recorded connecting Perampanel with any adverse chemical reaction – that I have found.
Now I have to do some Dr Google since it is getting too dangerous to be home alone or out in public alone, and it may be something literally in my head that needs seeing with an MRI- if this is the case it makes for a simple explanation by ???
Yesterday Andrew accompanied me to St Vincent’s nuclear Medicine department for a Sestamibi Scan, called ” Mibi” for short, of my heart.
The process involves a baseline scan without any medium followed by a period of rest, you can read about everything through these links here.
A sestamibi (MIBI) scan is a test that measures the amount of blood being supplied to your heart.
What is a sestamibi scan?
A sestamibi (MIBI) scan measures the amount of blood being supplied to your heart. The scan is done in two parts:
- At rest – sitting and breathing normally
- After a chemical or physical stress test – when your heart is beating faster after exercising on a treadmill or exercise bike[ ] ST. Vincent’s Hospital Heart Health – Sestamibi Scan
What Is A Nuclear Heart Scan?
A nuclear heart scan is a type of heart disease test. It is also known as nuclear stress testing and radionuclide myocardial perfusion imaging. It is performed to assess the condition and health of the heart. During the test, a doctor will inject a radioactive material or dye called a tracer through the vein into the bloodstream. The tracer travels along the veins towards the heart and special cameras outside the body can trace its journey. Two sets of images will be taken. First, the patient will undergo an exercise stress test or chemical stress test so that their blood flow can be monitored while ‘stressed’. The second set of images will be taken several hours or a few days later when the patient is at rest. The two sets of images will be compared for signs of any blockages and areas of damaged heart muscle. [ http://www.womens-health-advice.com/heart-disease/testing.html ]
Also used to gauge the damage to the heart by things such as S.C.A.D.
All in all the scan only took 4 hours rather than the 6 mentioned and wasn’t as scary as we had thought.
Due to the radioactivity I was warned to take a taxi home and to stay away from people for 48 hours until the Technetium Tc 99m sestamibi reached safer levels.. Andrew and I took the long blue and white taxi home raight to our doorstep and went out shopping today after I came home from respite.
If you are curios you may read about the Radioactive medium at the following URLs
- NAME: Technetium Tc 99m sestamibi [USAN:USP:INN:BAN] RN: 109581-73-9 Molecular formula C36-H66-N6-O6-Tc
- Information Sources
I feel somewhat tired and done it and have gone to bed early these past few nights but will be opening the Shed at Kooloora tomorrow.
Another wonderful story to caper through by a nutty rock – diamond, I believe.
Source: Our Awful Friends | Nutsrok
Here’s a painting I experimented with a bit, both in format and with paper stock. Last week I was driving towards Hudson on the road that runs along the lake. It was such a brutally cold day — made worse by the frigid squalls blowing across the field — that I couldn’t have painted in my car. […]