Strange goings on 7 October 2017

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I have had epilepsy, you could say, all my life and have run  out of anticonvulsants which manage the condition sufficiently.

For the past several month I have been experiencing, to various degrees, episodes when I cannot retain my balance or actually do fall over; accompanied by double vision wherein the second of the object appears to be quite distant from the first. These experiences began when I tried a new drug for me, last year, we discontinued the drug.

Now, using Perampanel I am having the same experiences though more extreme, the events usually occur either early mornings or late at night, though I had one mid-morning on Thursday.

Two days beforehand I was getting myself ready for a dental appointment ( Sydney Dental Hospital) after which I planned to visit Jessica at St. Vincent’s hospital where she has had her heart surgery – all good. I had gone into the bathroom to capture Jessica’s old walking stick hoping to remain upright on two sticks long enough for the episode to wear off and for me to do the usual ‘be in 2 places at once’ thing that is very much part of my life. By this time I was already having the seizure because of the fixated manner of thought processing, in the bathroom I tripped and fell hitting my forehead, back of head and hip on the porcelain toilet pedestal. Still have some very interesting op art on my face and rear.

I estimate that I was out for about 20 -30 minutes since I came to at the sound of the door being knocked which would have been Jessica’s Tuesday carer – the message to stop all services didn’t make its way to the end of the line. I still could not stand and crawled to the front door, praying she wouldn’t leave before I got to it. Hauling myself up by the lock I opened the door and then almost fell back over but was caught, the ambulance was called and a trip to Prince Of Wales Hospital  Randwick saw me for about 8 ish hours, where no one knew which way was up either.

I surmise that there may be a drug interaction we have missed this else it is something new to me in my older age. When prescribed Epilim with Lamictal quite some years ago the combination brought me to my knees – let’s say, but nothing is recorded connecting Perampanel with any adverse chemical reaction – that I have found.

Now I have to do some Dr Google since it is getting too dangerous to be home alone or out in public alone, and it may be something literally in my head that needs seeing with an MRI- if this is the case it makes for a simple explanation by ???

Andrew

 

 

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Sestamibi Scan posted 27 July 2017

Yesterday Andrew accompanied me to St Vincent’s nuclear Medicine department for a Sestamibi Scan, called ” Mibi” for short, of my heart.

The process involves a baseline scan without any medium followed by a period of rest, you can read about everything through these links here.

Sestamibi Scan – “Mibi”

A sestamibi (MIBI) scan is a test that measures the amount of blood being supplied to your heart.

What is a sestamibi scan?

A sestamibi (MIBI) scan measures the amount of blood being supplied to your heart. The scan is done in two parts:

  1. At rest – sitting and breathing normally
  2. After a chemical or physical stress test – when your heart is beating faster after exercising on a treadmill or exercise bike[   ]      ST. Vincent’s Hospital Heart Health – Sestamibi Scan

What Is A Nuclear Heart Scan?

A nuclear heart scan is a type of heart disease test. It is also known as nuclear stress testing and radionuclide myocardial perfusion imaging. It is performed to assess the condition and health of the heart. During the test, a doctor will inject a radioactive material or dye called a tracer through the vein into the bloodstream. The tracer travels along the veins towards the heart and special cameras outside the body can trace its journey. Two sets of images will be taken. First, the patient will undergo an exercise stress test or chemical stress test so that their blood flow can be monitored while ‘stressed’. The second set of images will be taken several hours or a few days later when the patient is at rest. The two sets of images will be compared for signs of any blockages and areas of damaged heart muscle.  [ http://www.womens-health-advice.com/heart-disease/testing.html  ]

nuclear-scan
Nuclear stress test to Diagnose CHD. 

Also used to gauge the damage to the heart by things such as S.C.A.D.

 http://www.womens-health-advice.com/photos/heart-tests.html

All in all the scan only took 4 hours rather than the 6 mentioned and wasn’t as scary as we had thought.

Due to the radioactivity I was warned to take a taxi home and to stay away from people for 48 hours until the Technetium Tc 99m sestamibi reached safer levels.. Andrew and I took the long blue and white taxi home raight to our doorstep and went out shopping today after I came home from respite.

Popular health advice for women

If you are curios you may read about the Radioactive medium at the following URLs

  1. NAME: Technetium Tc 99m sestamibi [USAN:USP:INN:BAN] RN: 109581-73-9 Molecular formula  C36-H66-N6-O6-Tc
  2. Chemidplus
  3. Information Sources

 

I feel somewhat tired and done it and have gone to bed early these past few nights but will be opening the Shed at Kooloora tomorrow.

 

 

 

S.C.A.D. 18 June 2017

Mayo Clinic Coronary Conditions

SCAD not just a heart attack

Mayo Clinic SCAD

The above links are just some of those you will find if you would like to know a little more about SCAD.

On the 7th June, Jessica had gone into St. Vincent’s hospital  for the routine pre-admission, before her Total hip replacement the following Wednesday, I had gone to the dental hospital to have some new dentures fitted, intending to go to the hospital afterwards.

Things were not to be as routine as they usually are, throughout the proceedings it was discovered that unbeknown to either of us Jessica had recently had two small heart attacks.

Jessica has Autonomic Dysreflexia and does not experience pain in the same way as I do which is why the slight pains in her chest and left arm were thought nothing of because they seemed such tiny pains.

An EEG, Cardiac ultrasound, CT Angiography later confirmed that a serious event had taken place. For those who know Jessica as soon as she dressed herself after the CT Angiography she shot through even though the Cardiac Specialist had wanted to admit her.

Well, we received a telephone call that evening from a Dr Andrew Jabbour telling madame that she had a very serious condition for which he was arranging an Angiogram the next morning. During the procedure Jessica suffered an incidence of  of Bradycardia which truncated the proceedings though enough information was gathered to make a diagnosis.

They called “code blue” and admitted her and when I arrived she was as chirpy as ever after her latest adventure.

Apparently her event of Spontaneous Coronary Artery Dissection had been totally asymptomatic since it cannot quite be determined when it happened and Jessica recalls no symptoms-

Symptoms

Signs and symptoms of spontaneous coronary artery dissection (SCAD) are the same as symptoms of other types of heart attacks and may include:

  • Chest pain
  • A rapid heartbeat or fluttery feeling in your chest
  • Pain in your arms, shoulders or jaw
  • Shortness of breath
  • Sweating
  • Unusual, extreme tiredness
  • Nausea
  • Dizziness

And I noticed none.

For all anyone seems to guess, for very little information came our way from her medical team, it may have happened a few years ago down to a few hours ago.

Published on Jan 13, 2015

Spontaneous coronary artery dissection (SCAD) is the leading cause of heart attack in women under age 40 and until recently was largely unstudied due to the erroneous belief that it was a rare occurrence. Novel patient-initiated research initiated in 2010 by the multidisciplinary Mayo Clinic SCAD Research Program SCAD is changing that. Mayo Clinic is the leading clinical and research program for SCAD, a cause of heart attack

 

Published on Aug 29, 2011

Don’t worry — you’re just tired and out of sorts after having your baby. But the chest pain experienced by the woman you’re about to meet was much more than a difficult recovery. She had a heart attack when a rare and deadly condition stopped blood flow to her heart. The same thing happened to another woman. After sharing their stories on social networking sites they found more women with the same problem. That’s when they

Published on Feb 21, 2013

A heart attack at age 35. That’s not supposed to happen. The woman you’re about to meet suffered what’s called a spontaneous coronary artery dissection, or SCAD. It’s a condition that’s hard to diagnose and there’s very little information available about it. Experts at Mayo Clinic have results from studies aimed at learning more about this life-threatening condition.


Jessica’s hip Replacement was cancelled and now she is getting to know the world of SCAD survivors with many appointments to various clinics.

Andrew

Vistit to Coal Loader 30th August 2016

P&O-Cruise-19-22-Aug.

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Here are a selection of photos Andrew and I took on our recent P&O cruise up and down the NSW Coast. We sailed on the Pacific Pearl. I contracted the novo virus and was confined to our stateroom for most of the cruise. Most photod were taken on the first two days and very few on Sunday morning. Many from the window as we looked out on the world. TV was good and room service fair.

Botanic Gardens 10th August